I haven't been able to blog since Mia had her test on Monday so I wanted to update everyone on what is going on with her. A few months ago she had a urodynamics test which had determined that her bladder could hold very little fluid so it was refluxing onto her kidneys. And the ultrasound she had on the same day showed that her kidneys were both swollen and urine was collecting on top of them.
On Monday Mia had a cystogram which required her to be catheterized like she had been for the urodynamics test but this time they filled her bladder with fluid and took x-rays of her bladder and kidneys. They determined that on a scale of 1 to 5 (1 being normal and 5 being really bad)her bladder was refluxing at a 3. They told us that this type of reflux can either be a primary issue and it will just get better on its own. Or it could be a secondary issue caused by her tethered cord and it would require surgery. The urologist seems to think that it is probably the latter but has ordered an MRI to help determine that.
Right now Mia is on an antibiotic that she has to take every night to prevent any infection due to her bladder/kidney issues. She is scheduled for another ultrasound and consultation with the urologist on June 8 and we are waiting to hear back about when she is scheduled for an MRI and a consultation with the neurosurgeon. We are currently in monitoring mode...if anything changes with her (good or bad) we will know more. Because of all the tests that she has had done we at least now have a reference point to work from. She'll be going back to the hospital about every 6 months so that they are able to monitor her condition.
Thanks for all the prayers! I have really felt them in the last few months and especially on Monday. Eventhough Mia was distressed and screaming during the test, I felt like I could stay calm and strong for her. I don't worry about her as much as I once did because I know that God is in control and he has a perfect plan for all of this.
2 comments:
hey! thanks for the update. i prayed for strength and wisdom for you and the doctors! and will continue to pray that your dependence on the Lord grow and that He would make Himself known to you through this. we miss you guys!
And, oh, how God is growing you...you are so much more mature and dependent on Him now than you were when she was tiny. We are all learning through her condition to lean on God--He is the Great Physician and His way is perfect. Love you and love that precious girl. :)
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